Breaking a rare disease treatment, rare diseased science expert group was established
Rare disease is actually uncommon. There are more than 7,000 rare diseases that are currently known worldwide. Although the number of patients with rare diseases is not much, more than 7,000 rare patients are adding together, it is a huge The patient needs to be concerned. At present, rare diseases in my country are low, and the diagnosis is difficult, and the public is urgently needed to increase the awareness of rare diseases. At the rare diseases of the People’s Damage Medicine and Ziongiku, the Director of the Branch of the Beijing Medical Association, the First Hospital of the First Hospital of Peking University, Ding Jie. On October 17, the People’s Daily Health Client hosted, Zi Ang Health Co-organized is the rare sickness of the people of the people and the people of the people. At first, I didn’t understand rare diseases like the public. I later learned that I have a very large rare patient population in China. Every rare disease patient is another heavy family.
Ding Jie mentioned that 80% of the rare diseases were caused by genetic genetic, because genes have ethnic and geographical differences, based on this, screening, prevention, etc., which can be carried out in the region, rather than a knife in the country.
Gu Xiang, Director of the Xinhua Hospital, Shanghai Jiaotong University, also pointed out that many rare diseases are not rare in China, such as 121 rare diseases that have been included in the "First Batch of Rare Diseases", estimated patients The number of more than 3.5 million, the most intuitive comparison is that there are many rare diseases, the number of people suffering from the most popular tumors are much sick than those familiar. Based on this relatively large number of people, we have gradually become clear, about 80% are hereditary diseases in rare diseases.
We have done a retrospective study of rare kidney disease, which misdiagnosed for 33 years. During this period, the patient had repeatedly went to more than a dozen hospitals, using many drugs that were not suitable for their own, very painful. Ding Jie said helplessly.
Gu Xi Fan introduced that there are more than 7,000 rare diseases recognized worldwide, even if the professional doctors are not fully understood. Some patients continue to be referred, often diagnosed many years after the onset, thus missed the best treatment time.
For rare disease treatment, early diagnosis early treatment, early prevention is more important.
Even if there is a drug can be cured, it is often desirable to make the patient.
Ding Jie emphasizes that in the face of the above problems, multi-partial collaboration should protect rare patients. Based on this, the People’s Daily Health Client combined with health jointly established the people’s famous doctor and Zoni Zhiku rare disease expert 上海美女工作室 group. Professor, Professor Ding Jie and Gu Xi, Professor Li Wei, Vice President of Beijing Children’s Hospital, Capital Medical University, Professor Wu Zhiying, Associate Dean of the Second Affiliated Hospital of Zhejiang University Medical College, Department of Sleep Center, Peking University People’s Hospital Professor Fang, Professor, Director of the Sleep Center of Xuanwu Hospital, Capital Medical University, Director and Professor Yuan Yun, deputy director of the First Hospital of Peking University, Professor Yuan Yun, Department of Neurology, Chief Physician, Department of Neurology, Pediatric Hospital, Fudan University, Zhongnan University Xiangya Professor Peng Mei, chief physician, chief physician in the hospital, composed.
After the group, the group will be in the same time in the people’s daily health client 上海洗浴中心水磨 health number platform and child health, share the knowledge of rare disease prevention, and share the rare diseases, facing the popularity of science, authority, practical rare disease knowledge, and enhance the public. For rare diseases, more rare patients benefit. I will go to the sickness of the sickness, and there are rare diseases, where patients can find any knowledge about rare diseases, including symptoms, diagnosis, treatment, literature and other professional content, and have the latest information on rare diseases, the latest treatment guide, A rare pharmacumn, etc., and can help patients to study the condition of the condition, find the problem of solving problems, predict the future treatment prediction plan, give patients with a full range of intelligent query knowledge base.
Disclaimer: The market 上海按摩fj体验 is risky, choose cautious! This article is for reference only, not for trading basis.